Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. It's part of an effort to shine a light on important but uncommon diseases in recognition of Rare Disease Day, which takes place annually on the last day of February. Suite 700 $2,500 scholarship awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to assist in college education cost. A 22 Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. An educational scholarship for students attending a California college/university with a learning disability. Program awards one scholarship per semester in the amount of $1000 to a high school, undergraduate, or graduate student who has cerebral palsy. Program awards a scholarships to students who use a cochlear Baha device and who are high school seniors intending to pursue higher education. Mary graduated from Wayne State University with a degree in journalism. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Program awards a scholarship to an individual with severe hemophilia A to further their education. #RAREis Scholarship Fund Apply before: 04/22/2022 # of Awards: 53 Amount: $5,000 Medexus B More Scholarship Program Apply before: 04/28/2022 # of Awards: 20 Amount: THE INFUCARE RX HEMOPHILIA AND BLEEDING DISORDERS SCHOLARSHIP Apply before: 05/01/2022 # of Awards: 1 Amount: Lawrence Madeiros Scholarship Apply before: 05/01/2022 # of Awards: 7 Program awards scholarships to students who have a disability and are enrolled in undergraduate or graduate studies in an accredited college or university. A scholarship for students who have been diagnosed with lyme disease. Learn More About the Grant. Offers scholarships to students that have physical and/or mental disabilities. Program provides scholarships to students with a documented language-based disability. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. Provides scholarships to children who have or have battled a pediatric cancer, and their siblings. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. This site is strictly a news and information website about the disease. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. The fund is to be used to subsidize soccer fees and other team expenses. Provides eligible students scholarship funds toward furthering education through private or public college/university. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. Sort by: Name **Filter Feature In Development** Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. This scholarship is for students pursuing a STEM major. You are now leaving the #RAREis Community website. Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Lyme Disease, Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Childhood Cancer, Child with a parent or sibling who has or had cancer. Disability Requiring Assistive Technology, Mobility Disability, Kellys Angels aims to restore fun and laughter to the lives of children who have lost a parent, primary caregiver or sibling to cancer, by providing grants for the activity of the childs choosing, Cancer - All in a loved one, Parent, Family Member, Loved One With Cancer, Terminal Illnesses. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. Always check with the individual program if you have questions. An education scholarship for active duty or honorably discharged U.S. veterans. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. Program awards scholarships for the legally blind attending a technical college. A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Program offers scholarship to any girl who is motherless for any reason to assist in furthering their education goals. Program awards scholarships to students that are blind, low-vision or have a physical disability pursuing higher education. Scholarship assistance solely to Out Black lesbians over the age of 50 attending any technical, undergraduate or graduate school located in the United States. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. | An educational scholarship for students attending a California college/university with a disability. Programs are listed in alphabetical order by program name. An educational scholarship for students with a diagnosed mental illness. In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. Burn Injury, Deceased Loved One, First Responders - Disabled/Injured/Deceased. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. An educational scholarship for family members of Indiana organ/tissue donors as well as living-related transplant donors, recipients and candidates. Program offers awards to students with a parent diagnosed with ALS, continuing their education. Program awards scholarships for students affected by epilepsy and other seizure disorders pursuing higher education. Lyme Disease, Chronic, Serious or Life Threatening Illnesses. Program offers scholarships to those affected by inherited bleeding disorders pursuing higher education. A GPA of 3.0 is required and commitment to extracurricular activities. Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. Rare Diseases . Our Rare Disease Policy in Action Program provides financial assistance toward higher education for exceptional students living with cystic fibrosis. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. Program offers scholarship to an individual with Down syndrome pursuing their dream of entrepreneurship. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Shes won a Society of Professional Journalists award for outstanding reporting. A scholarship to help with finances needed to attend any of the Adaptive Sports Center programs. Bereavement, Military related, Disabled - Veteran. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. Program awards scholarships to women diagnosed with hemophilia or von Willebrand disease pursuing higher education. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). Program provides a scholarship to undergraduate and graduate college students diagnosed with a heart disease, and enrolled or accepted into an accredited college or university in the US. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Applications accepted from early December - early May annually. Program provides scholarships for college students with a major limb amputation, who will be attending an accredited university as a full time student. Children with parents or sibling affected by chronic disease are also eligible. A scholarship for children of service members who died or became critically injured in the line of duty sine 9/11. Program awards scholarships to high school seniors with disabilities pursuing higher education. Program awards a scholarship to young cancer survivors. Program awards a scholarship to a full-time undergraduate student with limb loss or limb difference. Program awards scholarships to those whose lives have been altered due to injury while serving in the United States Armed Forces. Program awards scholarships to students diagnosed with essential tremors pursuing higher education. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. Chronic, Serious or Life Threatening Illnesses. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Scholarship will be funding students who are blind or visually impaired, ages 10 to 18 years old would like to attend the Space Camp (SCIVIS). Scholarship funds to partially sponsor visually impaired students ages 12 to 18 years old, who wish to attend Space Camp. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. "The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience," said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. August 19, 2020. Scholarship awards 3 students an individual prize of $3000 to full-time college students diagnosed with low vision. Mental Illnesses, ADHD, Bi-Polar Disorder, Depression, Eating Disorders, Posttraumatic Stress Disorder, Schizophrenia. "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. Program awards scholarships for children who've lost a parent to breast cancer. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Bronchiectasis News Today - EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US - August 20th, 2020. If you receive a scholarship award, you must notify NORD that you are accepting your award by Monday, August 17, 2020 at 11:59 . Provides a one-time scholarship for cancer patients/survivors attending college. Program offers scholarships to students living with Type 1 diabetes. Scholarship offered to students who have been affected by addiction that are pursuing a medical-related course of study. The EveryLife Foundation will manage the scholarship application process, selection process and distribution of funds independent of Horizon input. Program provides a one-time scholarship of up to $5000 to individuals living with epilepsy, their family members and caregivers. Details Written: Monday, January 4, 2010 Available to students in every state in the continental U.S., the ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice. Childhood Cancer, Cancers, Child with a parent or sibling who has or had cancer, Cancer - All in a loved one. Scholarship program created to assist cancer survivors who plan to continue their education in college or vocational school programs. Living with a rare disease can create many challenges accessing education shouldnt be one of them. Phone: 1-800-936-1363. On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. Physical Disability, Cognitive Disability. "NEMSN's Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. March 15, 2023 - Scholarship Application Window Opens. Program awards scholarships to transplant candidates, recipients, donors, and their immediate family members each year. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. Program provides financial assistance to children with a physical or psychological disabilities, or in the autism spectrum to help with child-canine services. Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Scholarship awarded to a student seeking to attend law school who has been affected either directly by leukemia or lymphoma or by that of a family member. Priority consideration will be given to members of a Students for Rare Club or Chapter and first- . $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. The FDA Center for Drug Research and Evaluation (CDER), Center for Biologics Evaluation and Research (CBER), and Center for Device and Radiological Health (CDRH) all support the development and. Bereavement, Cancer - All in a loved one, Childhood Cancer. Shes won a Society of Professional Journalists award for outstanding reporting. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Program provides a scholarship award to a student diagnosed with down syndrome seeking higher education or post-secondary classes. Provides a scholarship to a student affected by cancer. Program provides 9 Scholarships of up to $10,000 awarded to individuals with a dermatologic conditions seeking higher education. $2,000 award and art performing and development opportunities for musicians with impairment sensory, physical, cognitive, learning, socio-emotional disabilities, ages 14-25 physical or mental and more. Program provides scholarships to students diagnosed with down syndrome seeking higher education or post-secondary classes. Program provides scholarships to full-time students who have lost a parent. Lupus, Systemic Lupus Erythematosus (SLE). Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Provides a scholarship created to provide youth on home parenteral and/or enteral nutrition (HPEN) the chance to experience summer camp. Offers scholarships between to cancer survivors between the ages of 17-39. Disability - Mobility, Mobility Disability, Disability Requiring Assistive Technology, Special Needs, Wheelchair Bound, Paralysis, Paralysis due to Spinal Cord and/or Brain Injury, Paraplegia. Awardees will be notified in October. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. ), Mesothelioma Cancer Victims Memorial Scholarships, National Center for Learning Disabilities (NCLD), National Collegiate Cancer Foundation (NCCF), National Hemophilia Foundation - Kevin Child Scholarship. Forming a new rare disease community. Scholarships are awarded biennially to legally blind selected applicants studying for a career in the field of services to children or adults who are blind or visually impaired. Awards will be provided to 32 recipients for the Spring 2021 semester. I was able to watch . Scholarships that support completion of degrees by students with disabilities who need financial assistance at selected colleges and universities. A membership scholarship to the turner Syndrome Society for women diagnosed with Turner Syndrome. Program awards an educational scholarships to a student who lives with the ongoing challenges and complexities of hydrocephalus pursuing higher education. December 1, 2020 - Scholarship application closes December 20, 2020 - Finalists notified January 15, 2021 - Finalists must have all requirements submitted . The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program provides financial assistance to individuals with hemophilia for GED certification. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. Program provides financial assistance for educational tuition and related expenses for pre-kidney transplant patients whom are or will be undergoing dialysis treatments. Scholarships are awarded to spouses, dependent children and grandchildren of blinded veterans or an Active Duty member of the U.S. Armed Forces to assist them with higher education tuition. Program offers scholarship for those affected with a bleeding disorder pursuing further education in a health related field. Program awards kidney/transplant or urology patients, family members or medical caregivers who deserve to be recognized for their courage, strength, determination, generosity of spirit or kindness. A scholarship to support homicide survivors and victims of other crimes who are undergoing treatment for PTSD through any recognized service. Texas Associated Press Broadcasters Scholarship Recipient, 2019-2020 - . Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. Individual program if you have questions whose lives have been diagnosed with essential tremors higher! Adaptive Sports Center programs provides up to $ 500 to students diagnosed ALS... A higher education or post-secondary classes including frequent doctors visits and rigorous treatment regimens to subsidize soccer fees and team... Child of a parent or sibling who has or had cancer, Child with a diagnosed mental illness application Opens! 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